Further reports are available under ch.eupati.eu.
Annual activities report
"The digital patient" at the Swiss Patient Forum 2019
Are patients sufficiently competent in the increasing digitalisation in healthcare? Under what conditions are patients willing to cooperate and make use of the digitalisation? What hopes and fears are associated with this? What wishes and demands can be derived from this?
At the Swiss Patient Forum held on 25 October 2019, EUPATI CH brought together a vibrant group of patients, representatives, and their caretakers to discuss about the "digital patient", the associated challenges and opportunities in a welcoming atmosphere.
The prorgramme, report, presentations and wonderful photos capturing the spirit of the day are available at EUPATI CH.
Get involved in patient empowerment in Switzerland: Join up as a member of EUPATI CH association and share the EUPATI CH newsletter with your network.
CIOMS brings together stakeholders, to map out Patient Involvement in the Development and Safe Use of Medicines
On 30 April 2019, the Council for International Organizations of Medical Sciences (CIOMS), held a very successful Open Meeting in Geneva, Switzerland.
Its aim was to seek wide input from various stakeholders, through an open pre-meeting to the CIOMS Working Group XI who are developing an international guidance on Patient Involvement in the Development and Safe Use of Medicines. This pre-meeting also marked the 70th Anniversary of CIOMS. About 100 delegates attended from patient organisations, regulatory authorities, industry, academia, and from professional and international organisations.
Representing EUPATI (European Patients' Academy on Therapeutic Innovation) Switzerland and EUPATI overall (Europe-wide) respectively, Estelle Jobson and Matthew May took part. They both spoke briefly on panels and were pleased to hear numerous mentions of EUPATI throughout the day made by several speakers and members of the audience. The reputation of EUPATI has grown, favourably, far and wide, since its foundation in 2012.
Swiss Patient Forum 2018
What is quality of life for patients? How do those define it who struggle with it? And what do patients need to improve it, practically?
At the Swiss Patient Forum held on 28 September 2018, EUPATI CH brought together a vibrant group of patients, representatives, and their caretakers to brainstorm these burning questions in a welcoming atmosphere.
Read more in the report of the event and see all photos at ch.eupati.eu.
More information about EUPATI's activities and events can be found further below on this page.
Patients as key partners in clinical research
Because they have knowledge and experience of their own health conditions, patients are indispensable partners in medical research. In order to voice their concerns effectively in the development and implementation of clinical studies, patients need to have access to appropriate training and to scientifically reliable, objective and comprehensive information. Well-trained patients can improve the design and the results of studies.
The European Patients' Academy on Therapeutic Innovation (EUPATI) provides education and training tools for representatives of patient organisations, including a one-year expert training course for patients, a patient advocate toolkit and an online resource library. The national platform EUPATI Switzerland helps to distribute these tools and serves as a point of contact for inquiries. This national platform was initiated by the Positivrat Schweiz, the University Hospital Basel and Novartis Pharma Schweiz AG, and is supported by the SCTO and Swissmedic.
The SCTO is committed to more active patient involvement. The overall goal is to form a national platform that brings together interested parties from patient organisations, academic institutions, the pharmaceutical industry and authorities. We help to achieve this goal by co-organising events for the EUPATI platform Switzerland and seminars for science journalists. In addition, we establish contact with patients or representatives of patient organisations.
Foundation of the legal association
An Executive Board consisting of patients as well as patient organisation and industry representatives manages the association and is supported by an Advisory Board, which consists of patient, industry and government representatives and which is expanded continuously.
The first goal of the association is to spread the word about the EUPATI offers in Switzerland. For this purpose it adapts existing information material, spreads it via newsletters and transfers medical knowledge for patients and patient representatives through a toolbox on the EUPATI website. Furthermore, the association organises training sessions. Besides basic and advanced training courses EUPATI Switzerland seeks to assist in the political debate about involving patients in medicines research and development processes.
EUPATI is a European patients’ academy on therapeutic innovation operating a network of regional independent organisations in different countries. The aim is to better inform patients about therapies and treatments and to actively involve them in medicines research and development.
EUPATI platform Switzerland launched
EUPATI is a European patients’ academy for therapeutic innovation with regional platforms in different countries. Patients can educate themselves with the help of a toolbox, an online library and a training programme to engage better in medicinal research and development processes. 140 representatives of health and patient organisations, authorities and academy participated at the launch event.
First meeting in French-speaking part of Switzerland
On 25 March 2015 nearly 50 representatives of patient organisations, clinical research institutions, the pharmaceutical industry and authorities met in Lausanne to exchange their personal experiences and views of patient involvement in medical research and development. This event provided an ideal opportunity for potential stakeholders to learn about the EUPATI project and ongoing activities. The programme and presentations are available on our French page.
The European Patients’ Academy (EUPATI) seeks to increase the knowledge of patients and patient organisations in order to become effective advocates and counsellors in medical research, for example in the field of clinical trials, government agencies or ethics committees. Patients shall receive scientifically sound, objective and understandable information about medical research and development.
The aim of the meeting in Lausanne was to gather interested organisations and individuals and lay the ground for the creation of a national platform in Switzerland. The platform will assist EUPATI in the wider dissemination of educational material and locally support the interested audience in acquiring the necessary knowledge to engage in the medical research and development processes.
The experiences in patient empowerment were touchingly demonstrated during the meeting by patient representatives who presented their personal stories and journeys towards their engagement in the health sector. Representatives from academia, the pharmaceutical industry and the local ethics commission explained their work and explored the possibilities of patient involvement in medical research and associated processes.
Opportunities for patient (organisation) engagement are still rare in Switzerland and the willingness of many stakeholders to collaborate within such models is still lacking. It is for this reason that the national EUPATI platform in Switzerland will strive to support the creation of opportunities for patient engagement in Switzerland.
First national event
On 11 December 2014 the Swiss EUPATI National Platform gathered more than 50 Swiss German-speaking stakeholders. The participants gained information about EUPATI and the opportunities of patient engagement in Switzerland.
More information about this first event is available in German.