PPI for Patients & Public

Get Involved in Clinical Research

Patient and Public Involvement (PPI) means actively including patients, their families, and members of the public in the planning, design, and conduct of clinical research, not as study participants but as partners. Their perspectives help ensure that research is relevant, transparent, and aligned with the real needs of those it aims to benefit.

Resources & Training Opportunities

This video explains what PPI is and how it can be integrated into different stages of clinical research.

The video is available in the following languages: ENFRDEIT

The SCTO supports fair financial compensation for patients and public contributors involved in PPI activities.

This policy:

  • Recognises the value of their contributions
  • Outlines reimbursement for accommodation and travel expenses
  • Can be used by research projects across the SCTO Network and beyond

Before beginning a PPI collaboration, it’s important to clarify expectations.

This template includes:

  • Suggested terms for scope, timing, and compensation
  • Guidance on confidentiality and conflict of interest
  • Key objectives and responsibilities of both parties

Created with input from a multistakeholder working group.

Explore the training opportunities for PPI contributors: building skills to shape better research.

Need more information or support?

Contact the SCTO with any questions or feedback related to our PPI resources.