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Ongoing Projects Research on Research

Patient and Public Involvement Support Activities

Project ID: RoR2025_009
Lead: Nadia Elia and Mael Barthoulot, CRC Geneva
Contacts: nadia.elia@hug.ch, Mael.Barthoulot@hug.ch
Contributors: CTC Zürich, CRC Geneva, CRC Lausanne, DCR Bern, DKF Basel, CTU-EOC Lugano, CTU HOCH St.Gallen

Description:
The Swiss-CRC-PPI project explores how CRCs support Patient and Public Involvement and Engagement (PPIE), including researcher needs and opportunities for improvement.

Key Objectives:

  • Map CRC practices: Identify existing PPIE support models and gaps
  • Align with researcher needs: Understand expectations and satisfaction
  • Measure impact: Evaluate how PPIE contributes to research quality
  • Develop national guidelines: Support high-quality, consistent PPIE across CRCs

Methods:
Mixed-method study.

Publication of the project on OSF: https://osf.io/jxmbu/overview